With a chronic illness, you have an ENORMOUS supply of prescription medications and supplements that you will have to take long term. It takes hours to sort the pills for a week supply. You know you have a chronic illness when you get daily calls from your pharmacy and are on a first name basis … Continue reading My Medication and Supplement List
Now for another post about how I live with my multiple illnesses. PCOS is my only non-inherited chronic illness since the disorder isn't a gene. It has an impact on my life, but compared to my other health issues, it isn't that bad. How it Started PCOS isn't apparent until you have your period. I … Continue reading What It’s Like Living With PCOS
Sit in the Shower Showering takes ALOT of energy. Some people get shower chairs, but I have a shower tub, and I find shower chairs uncomfortable. I bought a bath pillow that I lean against while I sit. This makes showering SOO much easier. Do Everything in Bed Since my bathroom is next to my … Continue reading Tips for Getting Ready With a Chronic Illness
The worst of developing a chronic illness or it worsening later on is you know what you miss. Below are my things I missed from when I was healthy. Going Out I can go out, but it is very rare. And the time I do, I end up sweating buckets, feeling dizzy, and just feeling … Continue reading What I Miss About Being Healthy and How I Deal With It
I love concerts, but they are difficult with my chronic illnesses. I recently went to a Shawn Mendes concert (which was AMAZING), and I wanted to share the tips I use when going to a concert. Pack Paper Towels My POTS makes me sweat A LOT and going to a concert can make anyone sweaty. … Continue reading Attending a Concert with a Chronic Illness
One of my many chronic illnesses is Ehlers Danlos Syndrome (EDS). It is often linked to another one of my illnesses, POTS. What is it? EDS is an inherited connective tissue disorder that weakens the connective tissue. It is caused by abnormalities in the processing, structure, and production of collagen. The severeness of the condition … Continue reading What it’s Like Living with EDS
The spoon theory is a metaphor for how people with chronic illnesses or disability manage their energy. That's why we refer to ourselves as "spoonies." A spoon is a unit of measure that represents how much energy a person has. Physical activity requires and uses up a number of spoons, depending on how energy-draining it … Continue reading The Spoon Theory: What is it?
I was diagnosed with POTS seven years ago. It is a genetic condition. I was able to be diagnosed so young because of my sister who was a teenager at the time, which is when POTS starts to show symptoms, got diagnosed. POTS isn't rare, it is RARELY diagnosed. A study found 1 in 100 … Continue reading What It’s like living with POTS