Sorry this is late! October is Dysautonomia Awareness Month. To learn more about Dysautonomia go to Dysautonomia International. They are a great source for information about Dysautonomia. You can also check out their instagram for infographics and more facts. Facts about Dysautonomia More than 70 million people around the world have a form of DysautonomiaDysautonomia … Continue reading Happy Dysautonomia Awareness Month!
My Personal Experience I saw college as a necessity for me as a kid. I enjoyed learning, and my educated parents' experience with college encouraged me. It wasn't until later I found out about the other paths I can take and how people have found success in not attending college. Everything changed with my diagnosis. … Continue reading My Decision to Go to College with a Chronic Illness
Sit in the Shower Showering takes ALOT of energy. Some people get shower chairs, but I have a shower tub, and I find shower chairs uncomfortable. I bought a bath pillow that I lean against while I sit. This makes showering SOO much easier. Do Everything in Bed Since my bathroom is next to my … Continue reading Tips for Getting Ready With a Chronic Illness
The worst of developing a chronic illness or it worsening later on is you know what you miss. Below are my things I missed from when I was healthy. Going Out I can go out, but it is very rare. And the time I do, I end up sweating buckets, feeling dizzy, and just feeling … Continue reading What I Miss About Being Healthy and How I Deal With It
I love concerts, but they are difficult with my chronic illnesses. I recently went to a Shawn Mendes concert (which was AMAZING), and I wanted to share the tips I use when going to a concert. Pack Paper Towels My POTS makes me sweat A LOT and going to a concert can make anyone sweaty. … Continue reading Attending a Concert with a Chronic Illness
The spoon theory is a metaphor for how people with chronic illnesses or disability manage their energy. That's why we refer to ourselves as "spoonies." A spoon is a unit of measure that represents how much energy a person has. Physical activity requires and uses up a number of spoons, depending on how energy-draining it … Continue reading The Spoon Theory: What is it?
I was diagnosed with POTS seven years ago. It is a genetic condition. I was able to be diagnosed so young because of my sister who was a teenager at the time, which is when POTS starts to show symptoms, got diagnosed. POTS isn't rare, it is RARELY diagnosed. A study found 1 in 100 … Continue reading What It’s like living with POTS